2020 Decade · Life after a coma · Sickle Cell Disease · Survivors · Warriors


Pain caused by emotional distress is more deeply felt and longer lasting than that caused by physical injuries, according to a new study. Aug 28, 2008. Read Now having been through both I can understand why research says this.

If there is anything I have learned about pain in my life is that, unless you experience that specific kind of pain you cannot and will never understand what someone is going through. I have been in physical pain for 4 years with no relief, and before that I would get sickle cell crisis (A sickle cell crisis is pain that can begin suddenly and last several hours to several days. It happens when sickled red blood cells block small blood vessels that carry blood to your bones. You might have pain in your back, knees, legs, arms, chest or stomach. The pain can be throbbing, sharp, dull or stabbing). That is a mild explanation, for as long as I can remember I have been unable to describe the level of pain I am in. Only another Sickle Cell person will understand – the same way a woman can never explain childbirth pain to a man or another woman who have never had a child.

I cannot understand anyone’s pain if I have never experienced it. A few years ago I had a friend who’s boyfriend cheated on her, I was only able to comfort her because I knew what she was going through. I told her it will hurt worse than anything she every felt, it would hurt her to her core, it would be the only time she felt or knew her heart could literally hurt. I told her she would cry herself to sleep, she would cry just because crying felt good. She called me several times and ask how can she make it stop, I told her she don’t and can’t only time will help. The pain will last forever….(That’s emotional pain)

The physical pain I have been through has been hard and long but unlike emotional which even after you recover …..then the pain is forgotten or the pain is a far far away memory. In the last 4 years I have had 3 major surgeries both shoulders replaced and recently a hip replacement. I searched the internet before my first shoulder replacement and my hip replacement surgeries looking for what to expect, how to prepare, how to recover. Well, to be honest none prepared me enough for the reality of any. My right shoulder healed great, incision, recovery time, and just about everything went well. Now last summer I had my left shoulder replacement and to be honest I am not completely healed. I had terrible muscle damage which here we are 7 months later and I still cannot life my arm past my neck. Same body same surgery two different outcomes. I did the same for my hip surgery, I looked at youtube videos, googled some of my questions, nothing prepared me for the rules of this hip replacement.

INSTRUCTIONS Everything listed is for SIX weeks… I forgot to mention one significant thing for the rest of your life you will NEED antibiotics before dental work. Penicillin 2 hours before any dental work, and you will have problems flying. So if you are a traveler like me prepare for long hold ups and TSA.

NO bending or lifting your hip more than 90 degrees for 6 weeks

Home Health will be scheduled in a timely manner (basically ASAP) this is a Nurse, Occupational Therapy and Physical Therapy

You will be using a walker 2-6 weeks depending on your progress ( I still need my walker this is week 3), after you will be switched to a cane.

Continue to wear TED home 8-12 hours (compression stocking) mine I had to remove after 4 days because of swelling in my leg.

Blood thinners Aspirin 81mg

No soaking baths or swimming pools (unless you have a shower bench or a bath rail I recommend no showers)

No driving

No crossing your legs

Purchase at raised toilet seat with handles. (normal toilet seats are too low)

Sleep with a pillow between you legs ( move for people who move, cross their legs etc) I do not move at all while sleeping. Something I had to train myself to do in the last 4 years because of pain.

My advise for anyone who is single, make sure you have someone with you at all times. My son has been my pick up, put my socks on, my pants, my underwear, tie my shoes (anything that has to go through my legs) because I cannot pend. Getting around with a walker is difficult in the kitchen area.

The struggles of life after a coma and with sickle cell disease.

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