After a long day of flying and a week of rejuvenating my mind body and soul I have a letter….
Dear Life, Lupus and Sickle Cell,
If you want me to bow, I will stand up straight. You can kick me down today but I will stand tomorrow. If you want me to cry, I will gladly smile. I will laugh everyday until the day I die. If you want me to hate I will share my love depending on my own free will and not just fate. If you want me to give up I will struggle through and continue fighting my battles and I will never stop. If you want me to walk away I will go Nowhere. You can push me to the edge I will just find another way. If you want to break me I will stay strong because I still see the beauty. So, dear LIFE, can’t you see? I AM A WARRIOR and there is no way you can defeat me … for God has chosen me before I was born.
I met a wonderful woman on my journey who told me if I remember nothing about her … Remember this Romans 8:28 “And we know that all things work together for good to those who love God, to those who are called according to His purpose”… on that note GN Facebookers!! Live Love Laugh Learn…
This is another example of my FB memories, this was after my first solo trip to Mexico… at that time I was wrongfully diagnosed while I was in the coma with having LUPUS in 2014. Took 4 years of wrongful medication for a brilliant doctor to tell me my entire body organ shut down was caused by sickle cell and sickle cell alone. The fact remains that LUPUS and Sickle Cell cause the same issues in the body so basically I can understand it could be mistaken, but you would think that after 6 weeks in a coma they would of figured it out… “tisk tisk tisk” It’s sad that centuries has came and gone and still medical professionals do not have a clue about this disease that they cannot cure or treat it. The one drug that has finally able to help patients is now top on the president’s agenda to produce for COVID-19. Amazes me that the actual people who need it will find it harder to obtain and that saddens me greatly. When my doctor was working on creating this drug – I also worked professionally with him so I have first hand knowledge of obtaining the grant for the drug. He offered to try me on it but said I really did not qualify as my sickle cell was managed and controlled well (I guess little did he know know one controls that disease, it does what it wants, when it wants).
I am sure everyone has heard the talks about Hydrochloroquine. Hydroxychloroquine is in a class of drugs called antimalarials. It is used to prevent and treat acute attacks of malaria. It is also used to treat discoid or systemic lupus erythematosus and rheumatoid arthritis in patients whose symptoms have not improved with other treatments. If anyone reads my earlier post about sickle cell 101 I stated that Sickle Cell was born from a vaccine used to treat malaria in Africa. Here we are some centuries of years later and finally a drug to help in now in demand to be tested for something else. The circle of life.
Hydroxychloroquine is currently being studied for the treatment and prevention of coronavirus disease 2019 (COVID-19).
Only limited clinical trial information is available at this time to support the use of hydroxychloroquine for the treatment or prevention of COVID-19. Several hydroxychloroquine clinical studies are in progress in people with COVID-19 in China and other countries. However, more information is needed to know how well hydroxychloroquine works for the treatment or prevention of COVID-19. There also are concerns about the possible side effects and drug interactions that may occur from hydroxychloroquine.
Of note, the FDA has approved an Emergency Use Authorization (EUA) to allow hydroxychloroquine to treat adults and adolescents who weigh at least 110 pounds (50 kg) and who are hospitalized with COVID-19, but who are unable to participate in a clinical study.
Hydroxychloroquine should ONLY be taken under the direction of a doctor.
Ps: thinking about that trip and my mental state of mind.. that was a crazy time to fly solo. Thank God I remained safe and he took me there and back safely. No regrets though.
I remain a Warrior through my struggles.
Love Love Laugh Learn